Gluten Intolerant - but not Coeliac x2

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herika, Jun 28, 9:08pm
Ive been reading about allergies and came across an article from the http://allergy. healthcentresonline.com/ site that had interesting info on allergic and pseudo-allergic reactons caused by penicillins, cocoa and peppermint additives.
It says that the histamine release caused by the cocoa and peppermint depended on non-immunological mechanisms, i. e. pseudo-allergic reactions.

It also talks about allergic reactions to chocolate and cocoa and a person may be reacting to the chocolate or cocoa but the may also have a reaction to the additives in the chocolate.
Also cocoa powder may contain starch and that could cause a reaction.
Hope this info may be of help :)

herika, Jun 30, 8:41am
bumping for Wed evening :)

gaspodetwd, Jul 5, 8:38am
Seeing as though it has got a bit heated in the other GF thread - this had better come back. My chicken stock is cooling and I thought I would check out any good ideas from this thread. And for us - we are very similar to Herika - and it isn't just GF.

herika, Jul 21, 9:20pm
Yes, there are lots of people who not only have gluten intolerance but have other food intolerances as well. I do hope you get some helpful ideas from here.
Ive been having foods made with pea/chickpea/besan flour lately and find I have to be careful how much I eat at any one sitting. If I have too much it is too fiberous for me and my sysem plays up (even tho its GF). When I get some time Im going to experiment using half pea flour and half rice flour and see how that goes.

herika, Jul 26, 8:04pm
Hi, I checked out that story. Its great to read a success story such as this, and hopefully it will help others who are similar. (Note: Some people will still not be able to have foods such as oats).
I think extreme diets of any kind are not good. Since Ive been eating gluten free Im the healthiest Ive ever been, I rarely go to the doc with any complaint. I try to eat as much fresh, raw seasonal foods as I can as well as meat, fish, eggs, rice etc making my diet a balanced one too.
I add lots of herbs and spices to meals and have a good variety of foods. Before eating a GF diet I ate anything I wanted without thinking of the consequences, so finding out I was gluten intolerant has helped me have a much healthier eating regime. It took a lot of research but was well worth it.
Thanks for that link, all the best to you :)

herika, Jul 29, 8:24pm
Hi bedazzledjewels! Nice to see you again, thanks for the bump! lol :)

herika, Aug 18, 8:59pm
The blood tests to diagnose Coeliac Disease are the tTg and EMA ones. Then having an endoscopy confirms it.
To diagnose gluten sensitivity, which is nothing to do with CD, the
tests needed are the IgG-gliadin and the IgA-gliadin ones.
This test is not valued by Medics but now that NCGI has become an official status more are informed. YouMUSTspecify, strongly, you
want this test, esp if the CD ones come back negative.
As far as Im aware the MedLab South in Christchurch does these tests.
Out of 500 people tested only 50 have CD.

herika, Sep 3, 6:53am
Keeping it alive :)

herika, Oct 12, 5:18am
I cant help you with that but maybe someone else can :)

bedazzledjewels, Oct 15, 8:27pm
Problems with gluten? You might to listen to this podcast -

Dr. Stephen Wangen Says You Can Be ‘Healthier Without Wheat’

http://www.thelivinlowcarbshow.com/shownotes/2892/dr-stephen-wangen-says-youre-healthier-without-wheat-episode-410/

"Listen in for a fantastic conversation about gluten, which grains have in them, why it can be so hard on so many people whether they suffer from Celiac disease or not, the value of getting adequate Vitamin D, the general effects of antibiotics on the intestinal tract, and much, MUCH more!"

herika, Nov 2, 7:09pm
Hi bedazzledjewels, great link! thanks for posting it :)

winnie15, Nov 9, 6:11am
i have cut out most of my sugar ,all dairy, eggs and wheat , i have more clarity , less fatigue and less fibromyalgia pain, i have also lost 9 kgs. I eat mainly chicken or fish & veges, and have at least 8 glasses of water a day. I'm not celiac but i do have a sensitivity of some sort to wheat, gluten, plus sulphrites in foods including dried fruit hams and salami's. I dont miss all this food because they make me feel very sick. i did try buckwheat as an alternative but i get bad tummy from it. anyone else find buckwheat a problem?

bedazzledjewels, Nov 9, 6:28am
You may be interested in this comment:
"Wheat Germ Agglutinin - "It isn't all about the gluten"

http://primalmuse.blogspot.com/2010/11/wheat-germ-agglutinin.html and this one - "Medical Acceptance of the Celiac Pandemic: Is the Decades-Old Ridicule Ending?"

http://primalmuse.blogspot.com/2010/11/medical-acceptance-of-celiac-pandemic.html

herika, Nov 26, 1:49am
Hi winnie,
Wow, you have done really well!Yes, I also get a bad reaction to buckwheat, some people do have an intolerance to it unfortunately.
You are very good to have 8 glasses of water a day, I struggle to drink water and have tried all the tricks like putting lemon juice in etc but I just cant seem to get around not liking it!I drink tea, some herbal, without milk though and have the odd glass of water if its really cold. :)

herika, Dec 14, 6:59pm
That place sounds fantastic! Heres their details incase anyone is interested in going there:650 Ferry Rd, Woolston. (03) 943-222 :)

weddingflowers, Dec 15, 3:46am
Herika you will know doubt know this - how do I cook a raw ham that I'm purchasing for my Christmas lunch????I am a coeliac and so is my daughter.I did cook one years ago using Sangrita wine as a base, but since moving I have lost that recipe.Any suggestions - for anyone would be gratefully received.Merry Christmas - Glenys

herika, Dec 15, 7:35pm
My post 148 repeated: With Xmas just around the corner some people may need to be careful of that Xmas Ham.Carrageenan (seaweed extract) can be added to the gel when processing a ham. This can cause diarrhoea in some people.Also wheat starch, gluten and sodium caseinate can be in the brine used.If it doesnt mention these ingredients on the label you may need to ring the manufacturer and ask them.If they cant guarantee its gluten free it may be best to avoid it. I dont have ham so dont have a recipe sorry. You could try a google search, Im afraid I did and couldnt find a recipe I would recommend.Sorry I cant be of more help.We usually have turkey, chicken or lamb. :)

herika, Dec 25, 10:10pm
This info is from a NZ site: www.foodreactions.org.Non Coeliac Gluten Intolerance:
Many times when a person is screened for CD, tests indicate that the disease is not present. This despite that these persons suffer from symptoms upon digesting food containing gluten. This is very interesting or perhaps confusing to many. But put simply, this person may be Non Coeliac Gluten Intolerant (NCGI). It is estimated that around 15% of the world population is NCGI as opposed to less than 1% of Coeliacs.
Gluten consists of many long elastic chains of proteins lined along each other, giving it the characteristics of a dough. Not all of them cause Coeliac disease, but some can cause irritation to the small intestine, enough to hinder the cells of the lining from enzymes production to break down foods.
To confirm if you are NCGI do an elimination diet. Avoid all gluten food for at least two weeks and then introduce it. If symptoms return, and previous tests were negative or inconclusive then you know that you are NCGI.[/quote]
Thought Id repeat this info as its so important :)

herika, Dec 31, 6:27am
Keeping this up there! :)

herika, Jan 5, 7:06pm
Hi, I may be the same with oranges! I put the juice of half an orange into some scrambled eggs the other day and have been wondering why I reacted badly to it.I normally add a little goat milk but hubby likes the juice so put it in.I was going back over this thread and saw your comment about oranges so it got me thinking. Will give the orange a miss next time and see what happens :)

jubre, Jan 11, 12:46am
Maybe some of you could check out the link that I heard talked about on NewstalkZB at 5.50am thismorning. betterbods.co.nz thenclick on the TV3 interview from last year. It ws about kids that used to suffer badly from all sorts of conditions. I found it very interesting.

herika, Jan 12, 7:00pm
Hi jubre, thanks for that, I will certainly check it out when I have some time.If anyone else finds it helpful please let us know :)

herika, Jan 12, 7:06pm
Someone remarked that Dr Rodney Ford was only one man and his opinions - he actually works with a team of specialists at Christchurch Hospital.You can read about them and their guidelines at: www.healthpathways.org.nzDr Ford has been doing gluten sensitivity research and promoting the concept for over 10 years. Theidea has been met with stubborn resistance from majority of medical practitioners. But the tide has turned. Overwhelming clinical evidence of gluten sensitivity has led to the adoption of the “gluten-sensitive diagnosis” by the Department of Paediatrics, Christchurch Hospital. (This info was taken from the www.ntolerance.co.nz website).:)

herika, Jan 12, 7:12pm
"Doctor Rodney Ford is a Paediatric Gastroenterologist, Nutrition Consultant and food Allergist. He has been Associate Professor of Paediatrics at the Christchurch School of Medicine, University of Otago, New Zealand. He has a worldwide reputation. He has been helping people with nutrition and food problems for more than twenty years".

annie.nz, Jan 13, 9:02am
Never trust a self-promoting doctor.I mean to say, www.doctorgluten.com?