Gluten Intolerant - but not Coeliac x2

Never trust a self-promoting doctor.I mean to say, www.doctorgluten.com!

You are very choosy herika about what you will accept and what you won't. You refer to ntolerance website to glorify Dr Gluten yet on the same site it recommends Bakels Flour for gluten free people yet in your earlier posts you condemned this flour because in your words "it contains additives" that are harmful.

amen,
I so agree with melford and annie,I have bakels flour and it does not afect me and yet I am so sensitive,the doctor told me,I am one of the worse cases he has seen.
I have been drinking instant coffee,that is what has caused my rash

hi earthangel, Im glad you found out what was causing your rash. Yes, instant coffee can have gluten fillers in it.I dont necessarily agree with everything on every website and I also dont necessarily agree with everything on Dr Fords website, or whats in the Coeliac websites etc.The facts are Dr Ford is highly qualified and works with a team at Christchurch Hospt and that must account for something. Additives often affect people adversely as well as gluten, and some people are intolerant to gluten and some additives and preservatives, so it may pay someone to consider the possibility that it could be the additive affecting them in a product that is said to be gluten free.:)

Its great now that gluten sensitivity has been given official status, thanks to Dr Rodney Ford and his team.For all those people who are gluten sensitive/intolerant and non-Coeliac andcant have gluten, cows milk, vege gums, additives and preservatives, and various other foods such as peanuts, soy, tomatoes, rice, corn etc etc it means we will now be taken seriously.:)

His qualifications show quite clearly that he's a pediatrician.One of dozens in NZ.He's also an Associate Professor, although that is not a qualification, but a job title, also one of dozens in NZ.

My point is that if any one person's opinions is at variance with the bulk of current researchers' opinions, the logical stance isn't to necessarily to believe the one that's a little out of step.

Its not "one persons opinions", he works with a team, a specialised team and has been doing his research for 25 years.Doctor Rodney Ford is a Paediatric Gastroenterologist, Nutrition Consultant and food Allergist. He has been Associate Professor of Paediatrics at the Christchurch School of Medicine, University of Otago, New Zealand. He has a worldwide reputation. He has been helping people with nutrition and food problems for more than twenty years.His qualifications:MD, MB, BS, FRACP. Also the research he has done and continues to do is backed up by medical records and reports. He has been helping people (not just children) with GLUTEN SENSITIVITY - which is different to the gluten intolerance Coeliacs have.There is a big difference here! Most researches hadnt accepted the concept of gluten sensitivity until Dr Fords findings, now: "Overwhelming clinical evidence of gluten sensitivity has led to the adoption of the “gluten-sensitive diagnosis” by the Department of Paediatrics, Christchurch Hospital".Dr Ford says that this change of stance will come as a great relief to the many gluten-sensitive sufferers, who previously had been given no support for taking the gluten-free option.Its official, not just one mans opinion :)

I agree annie.nz - he is one man out of dozens but herika won't acknowledge it. She takes every word he says as being gospel

He is the most qualified in relation to NCGI (Non Coeliac Gluten Intolerance) in NZ. I do not know of any other qualified person of his stature in NZ that has done the research on gluten sensitivity that he has, perhaps you could tell me "the dozens" you speak of.I do not take every word he says as being gospel, but his findings are helping so many people who would not otherwise have that help.:)

Taken from: www.foodintol.com:'Celiac Disease (CD) was the first type of Gluten sensitivity for which diagnostic testing was devised - in the 1940s.
Although Celiac testing is still used in many clinics as a first test for Gluten sensitivity, it only picks up the small percentage of Gluten-sensitive people who are Celiac.
It misses the NCGS patients. Consequently this latter group is poorly diagnosed and misses out on discovering the simple and drug-free remedy of a Gluten-free diet for a dramatic recovery".
Thank goodness for Dr Ford and his research, as now NCGI people are OFFICIALLY recognised :)

I titled this thread "Gluten Intolerant but not Coeliac".This thread may not be suitable for Coeliacs, although the info in it could benefit them, but its really for people who are NOT Coeliacs but who have an intolerance (or sensitivity) to gluten.If you do a google search using the words: "Non Coeliac Gluten Intolerant" heaps of links appear in relation to this.A lot of them are American but the info on the differences between CD and NCGI is all there.:)

Dr Ford has worked with a leading American gluten researcher. Taken from www.againstthegrainnutrition.com: If your doctor thinks there is no research to support gluten sensitivity that is not celiac disease, three new scientific abstracts published in a Journal of Pediatric Gastroenterology and Nutrition supplement and presented at the annual NASPGHAN pediatric gastroenterology scientific meeting in mid-November might change his or her mind. Leading gluten researchers Alessio Fasano, MD, of the University of Maryland Center for Celiac Research was involved in two of the research reports, and Rodney Ford, MD, of the Children’s Gastroenterology Clinic in Christchurch, New Zealand, authored the other. American Medical Association, 2009;302(11):1225-6. There is some very interesting reading about being gluten intolerant/sensitive on this site.Here are a few more places you may like to investigate relating to NCGI: www.foodintol.com, www.foodreactions.com, www.oprah.com :)

Hi bodieblue, Im wondering how you are getting on. I hope you are off the losec by now.My father was on it for years then had a change of doctor who took him straight off it saying it wasnt for long term use!Unfortunately his system was really damaged by then.We, as humans are supposed to eat food, but not preprepared and packaged foods full of additives which can damage us. Because of my intolerancesIm eating a lot healthier now than what I was 20 odd years ago, and have a full and mostly happy life.Hopefully this thread will be of help to you and others too :)

Am I lucky?Lucky that if I eat something with even a small amount of gluten in it I get a really bad reaction and that stops me "cheating".I know some Coeliacs ignore the warnings saying such a small amount doesnt do any harm or a little bit here and here isnt going to matter, or its impossible to avoid all gluten.Well, I have to avoid all gluten or I suffer for days, so I guess Im better off than someone else who doesnt have any obvious symptoms.At least having this gluten intolerance has led me to eating a healthy diet which has got to be better all round.I hope the information in this thread helps others, esp in relation to be gluten intolerant but not a Coeliac.:)

Am I lucky!Lucky that if I eat something with even a small amount of gluten in it I get a really bad reaction and that stops me "cheating".I know some Coeliacs ignore the warnings saying such a small amount doesnt do any harm or a little bit here and here isnt going to matter, or its impossible to avoid all gluten.Well, I have to avoid all gluten or I suffer for days, so I guess Im better off than someone else who doesnt have any obvious symptoms.At least having this gluten intolerance has led me to eating a healthy diet which has got to be better all round.I hope the information in this thread helps others, esp in relation to be gluten intolerant but not a Coeliac.:)

Same as me after being tested by a naturopath, also onion for me and, mushrooms, raisins, chocolate AND carob would you believe. Intersting that the potatoes, tomatoes, eggplant are in the nightshade family and also to my horror so are capsicum.i still eat bread but have cut down considerably and have the odd bit of capsicum in salad but usually pick out the tomatoe, capsicum and onion. My friends think I'm mad but hey it's me that gets the gut-ache

bumping for Friday

Hi the-bat, that is interesting about the carob.I have to be careful with capsicums and tomatoe (I eat acid free tomatoes) but I seem to be okay with potatoes.Its amazing how everyone can be so different!Like you, some people cant understand me but having to be very careful about what I eat is just my situation and thats what I have to do so I can live a normal life. In the end its all good :)

Heres some infor on carob for you:
Adverse Reactions:
IGE AND IMMUNE:
Allergic reactions.
Allergy to carob gum in an infant. A 5-month-old child with Gastroesophageal reflux (GER) was allergic to an antiregurgitation milk formula containing bean gum as a thickening agent. She developed explosive vomiting, urticaria, and a rash on her face soon after the onset of her first feed. (Savino 1999 ref.7157 3)
OCCUPATIONAL EXPOSURE:
Food Industry.
Asthma and rhinitis to carob bean flour in a man who handled carob bean flour as part of his work in a jam factory. After 2 years in his job, he complained of work-related rhinitis and irritated eyes. Asthma appeared 3 years later. Symptoms disappeared over weekends. Biochemical evidence suggested that the allergy was IgE-mediated. (van der Brempt 1992 ref.2026 4).
Rhinitis and asthma was reported in a man who routinely handled carob bean flour as part of his work as an ice cream maker. Skin and serum specific IgE were both positive. (Scoditti 1996 ref.2025 7)
NON IMMUNE:
May contain tannins (inhibit growth and appetite), and trypsin inhibitors (may depress growth). The pods contain up to 1.5% tannins, which interfere with the body's utilisation of protein.
Ingestion of carob bean gum caused a significant reduction in the absorption of Ca, Fe and Zn when compared to the control diet. (Harmuth 1982 ref.2028 5) - zinc and maybe of iron (Bosscher 2001 ref. 7153).
Carré warned that use of a carob seed preparation as a thickener could cause loose, gelatinous stools of sufficient frequency to warrant temporary withdrawal. (Carré 1985 ref.7198 2).

Gluten Intolerant - but not Coeliac x2

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