Gluten Intolerant - but not Coeliac x2

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herika, Aug 10, 7:12pm
I like to keep an open mind and therefore am quite intrigued in the sour dough thread. I wonder if anyone who is gluten intolerant/sensitive and NCGI has tried this bread and had no symptoms!I would be very keen to find out as it sounds very interesting and does make sense. So if anyone has tried with bread successfully please let us know :)
gaspodetwd, Aug 12, 5:01am
recipe needed for a Gluten free pasta sauce - Can't base it on bacon or tomatoes, or eggplant, or capsicums or sausages. We now CAN have parmesan and limited other dairy. Anyone got a carbonara type thing! Orpesto type thing! please. TIA
herika, Aug 12, 7:20pm
This is just an idea, could you try substituting the tomatoes and capsicums etc for leeks and peas! And as its the whites of the eggs that usually are the problem just use the yolks.Are you ok with cream! If not what about using evaporated milk! (it would take a while to condense down tho I spose). Use herbs to flavour it, parsley is good. One thing I do sometimes is to stir fry what ever I want in the way of onions, garlic, veges etc just in oil using plenty of herbs such as oregano, dill, basil for flavour then add some stock, and thicken with maize cornflour. You could try that over or mixed with pasta and sprinkle the parmesan on top. :)
herika, Aug 12, 8:30pm
I noticed in gaspodetwd's post they mention they cant have tomatoes and capsicums.These plants are "related" into what are called genus (family) groups.Often if a person cant have tomatoes then chances are they cant eat capsicums or anything in the same group.Other groups are:in the Cabbage family, broccoli, brussels sprouts etc.In the buckwheat family is rhubarb and sorrel, in the cucumber family its: gherkin, melon, squash and marrow. There are many more and doing a google search will give you the rest :)
herika, Aug 13, 2:52am
Ive been so careful with my diet for so long and now seem to be able to eat some things I normally cant. Some of them I still have to be careful about, like corn, but there are some things, like tuna, I seem fine with now.Im too scared to try anything with vege gums in though! Im finding the acid free tomatoes good and have even started eating mussels (cut up and made into fritters). Ive been using Kings Choice Ezi Cook Basmati rice lately and find it very good. :)
frances1266, Aug 13, 4:04am
Pasta sauce without tomatoes 3/4c cashews
1/4c pine nuts
1T lemon juice
1 garlic clove
2t yeast flakes
1/2t thyme
1/2t salt
1/4t black pepper
3/4c water
Blend until smooth and mix with cooked pasta and warm through for a few seconds.
herika, Aug 13, 7:20pm
Yeast flakes could be a problem for some people otherwise that seems like a good substitute, I wonder if the yeast could be left out or something else used.I like stir frys and have them quite a lot.I use Braggs All Purpose Seasoning (Soy sauce) as it has no alcohol, vege gums or yeast in it.It also has no: preservatives, additives, colouring agents or chemicals and is not fermented.It is non-GMO certified soybeans and purified water only.For a marinade add apple cider vinegar, garlic, honey, lemon juice, brown sugar or what ever combination you like. :)
herika, Aug 13, 7:55pm
Ive been reading more about The Gluten Syndrome and the latest information makes for interesting reading. Researches (in NZ) have found gluten most often damages other tissues, organs, nerves or even nerves in the gut, beside the villi, meaning NOT NECESSARILY including the villi. In these cases villi biopsy is negative. There are gluten related antibodies (gluten itself, gluteomorphins, wheat - the whole kernel, and IgMs) which early investigationsindicate many patients have that are not checked in common "celiac "panels.Standard tests usually only test tissue transglutaminase (tTG-IgA, IgG) and sometimes gliadin (AGA-IgA, IgG) .Some researchers believe tTG (today's screener) is NOT always elevated in all gluten syndrome patients.
herika, Aug 13, 7:59pm
continued. Published research indicates that gluten may at times break down into a number of "pieces" or glutenins for which there are no tests at this time.For this reason, it is suspected that some patients may react to gluten in ways that cannot be confirmed by current inadequate antibody panels.Also: other foods may cross react with gluten antibodies. Practitioners suspect these other cross reactive foods may keep gluten antibodies running high even on a strict gluten free diet, or they may react on their own and produce symptoms similar to the gluten free diet.Foods believed to cross react include wheat, barley, rye, corn, soy, milk, eggs, yeast, coffee, sesame and chocolate, and in some cases, oats.Even some non gluten grain substitutes may rarely trigger reactions in a few people, including buckwheat, quinoa and millet.
herika, Aug 13, 8:02pm
Reading that explained so much to me and answered so many of my questions no one else has been able to answer.It has given me a better understanding and confidence too.I hope it helps others out there :)
earthangel4, Aug 13, 8:29pm
Thanks so much for this,I have noticed I am not so well,when I eat,eggs and cheese,fatty meats,coffee and I have trouble with gluten as my tummy,ankles and face swell up and I get so tired,and run down and live in the loo.
Thankyou Herika for taking the trouble to do this
herika, Aug 15, 1:28am
You're welcome earthangel4 Having a gluten sensitivity as well as not being able to eat other foods as well makes it difficult sometimes but at least now people who are NCGI and have other food allergies etc are being taken seriously.Have you tried just eating the egg yolk as its usually the white that causes the problem. Some people find Slippery Elm powder helpful too. :)
geminisis, Aug 15, 3:20am
Hi there. My son (2) is Gluten Sensitive and has a peanut allergy and gets hives on his face and neck when he touches fresh tomatoes, eggplant and capsicum(Potato ok) However I am trying to take potato and all tomato products out of is diet now to see if I can rid him of his less obvious reactions.wee skin iritations/bloated gut etc. Dr Rodney Ford did the tests and he has the 'markers' for Coeliac Disease, so could well develop it no matter what. So there is a connection there between the GS and CD.
geminisis, Aug 15, 3:24am
Next will be his soy milk. which he looooves. Wont touch goat, cow or rice milk.really picky wee fella. Makes it hard as his diet is already very limited. Wont eat chops, steak, chicken, or fish. Just gf sausages and mince, and limited vege. Nightmare! You bet I keep trying!
herika, Aug 18, 8:59pm
The blood tests to diagnose Coeliac Disease are the tTg and EMA ones. Then having an endoscopy confirms it.
To diagnose gluten sensitivity, which is nothing to do with CD, the
tests needed are the IgG-gliadin and the IgA-gliadin ones.
This test is not valued by Medics but now that NCGI has become an official status more are informed.YouMUSTspecify, strongly, you
want this test, esp if the CD ones come back negative.
As far as Im aware the MedLab South in Christchurch does these tests.
Out of 500 people tested only 50 have CD.
herika, Aug 19, 2:57am
it must be very hard for children with food sensitivities etc.Hopefully reading through this thread will help you, there is a wealth of informaiton in it :)
herika, Aug 23, 10:19pm
Dr Rodney Ford is very informative when it comes to gluten issues.This is taken from a newspaper article: Ever wonder how gluten can cause such a wide array of symptoms in so many different people! Dr Fordjust may have the answer – that gluten causes symptoms, in both celiac disease and non-celiac gluten sensitivity, by directly and indirectly injuring nerve networks that control various organs and systems in the body. Gluten can provoke significant ill health other than celiac disease and symptoms “outside” the gut, such as the skin condition eczema and the nervous system disorder ataxia. Interesting.
herika, Aug 25, 9:23pm
bumping for coolkat11
herika, Aug 28, 2:08am
I read this the other day: "Published research indicates that gluten may at times break down into a number of "pieces" or glutenins for which there are no tests at this time.For this reason, it is suspected that some patients may react to gluten in ways that cannot be confirmed by current inadequate antibody panels.Many patients choose to listen to their own bodies' message and are thankful the body was able to tell them something is not right, even in the face of inadequate negative testing".
herika, Aug 28, 2:13am
contd. Indiscriminate, repeated gluten indiscretions may eventually cause serious physical and neurological damage/psychiatric symptoms and study indicates higher mortality rates. Dr Rodney Ford is such an authority on the subject of gluten intolerance (sensitivity) and its great we are getting all this new information. :)
herika, Aug 28, 2:16am
I found this quite informative: "Dr. Rodney Ford of New Zealand points out that if the nerves in an organ or system are damaged in some cases there may be little discomfort or few symptoms until there is serious dysfunction or organ failure.The very nerves that give warningare themselves damaged/silenced.But slowly dysfunctional nerves in an organ, for instance, affect the health and function of that organ or system.This phenomenon of silenced nerves may be partly why many folks who still think they are fine discover they have the gluten syndrome only after a relative is diagnosed".
herika, Aug 31, 7:49pm
This is what Dr Ford says about a child having soiling accidents: Dr. Ford cites a case in his practice of an encopretic school aged child (the child experienced soiling accidents long past potty training age).After the gluten free diet was introduced, this distressing problem resolved.The nerves in that section of the digestive tract healed and the child knew when it was time to visit the toilet.I thought anyone who's child is having this problem may be interested.:)
herika, Sep 6, 4:00am
This also from Dr Ford's website: Practitioners suspect these other cross reactive foods may keep gluten antibodies running high even on a strict gluten free diet, or they may react on their own and produce symptoms similar to the gluten free diet.Foods believed to cross react include wheat, barley, rye, corn, soy, milk, eggs, yeast, coffee, sesame and chocolate, and in some cases, oats.Even some non gluten grain substitutes may rarely trigger reactions in a few people, including buckwheat, quinoa and millet. :)
dan1st, Sep 8, 10:03pm
I tried gluten free to see if it helped my bloating. I found that I wasnt so tired and had better clarity however I was so constipated for the six weeks that I went to the doctor 3 times. Since the earthquake because of shops being closed I have eated normal bread etc and have found that Im back to regular. Has anyone else had this issue and if so what did they do!
herika, Sep 10, 8:36pm
From Dr Fords website: Overwhelming clinical evidence of gluten sensitivity has led to the adoption of the “gluten-sensitive diagnosis” by the Department of Paediatrics, Christchurch Hospital.The members of this Child Health Team include three paediatricians and seven general practitioners.Their guidelines are posted on their website http://www.healthpathways.org.nz.
The document states that if you have symptoms of coeliac disease (such as: poor growth, persistent gastrointestinal symptoms – diarrhoea, abdominal pain, bloating, constipation, vomiting – irritability, or iron deficiency), then a gluten-free diet might help, whatever your blood tests results might show.If you have an abnormal tTG (the marker for gut tissue damage), then you are advised have and endoscopy and then go gluten-free.On the other hand, if you have a normal tTG, then you are encouraged to give a gluten-free diet a go anyway – as you might be gluten sensitive.