Dr. Ford says that this change of stance will come as a great relief to the many gluten-sensitive sufferers, who previously had been given no support for taking the gluten-free option.He says that a lot more research is needed to better understand how gluten is affecting so many people.His research has found that about one in ten people have this sort of adverse reaction to gluten. He is currently conducting a series of double blind challenges to better document the extent of gluten sensitivity children.
gadgetman,
Sep 12, 5:15am
To confuse issues There are people who can have gluten as long it is not from wheat. I mean wheat intolerance. I am happy to eat Spelt, barley, oats and rye as long it is not contaminated with wheat.
herika,
Sep 13, 12:15am
I dont thinkthat confuses anything You are just stating a fact in relation to what you can and cant eat.Everyone is different in some ways as to what they can and cant eat.:)
herika,
Sep 16, 7:34pm
Its so great to have all this information available now.Hoping this thread will be of help to anyone coping with a gluten intolerance of any sort :)
herika,
Sep 17, 8:50pm
Even Coeliacs have to be very careful: 'A breadcrumb won't hurt someone with coeliac disease'.MYTH. Even very small amounts of gluten can be toxic to people with coeliac disease. Taking sensible steps to avoid cross contamination with gluten is therefore important.
Top tips include: keep cooking utensils separate during food preparation and cooking, avoid frying food in the same oil that has previously been used to cook gluten containing foods, use a clean grill, separate toaster or toaster bags to make gluten-free toast, use separate breadboards and wash surfaces thoroughly. This information was taken from the NZ Coeliac Society website :)
earthangel4,
Sep 18, 6:03pm
and this one,some good knowledge here
herika,
Sep 18, 7:47pm
Published literature proposes that many gluten syndrome patients do NOT have elevated tTG (a commonly used screener), AND there are many significant gluten related antibodies that are not checked in today's standard tests, including gluten itself. a. There are gluten related antibodies (gluten itself, gluteomorphins, wheat - the whole kernel, and IgMs) which early investigationsindicate many patients have that are not checked in common "celiac "panels.Standard tests usually only test tissue transglutaminase (tTG-IgA, IgG) and sometimes gliadin (AGA-IgA, IgG) .Some researchers believe tTG (today's screener) is NOT always elevated in all gluten syndrome patients.
herika,
Sep 18, 7:49pm
Some researchers say other foods may cross react with gluten antibodies. Practitioners suspect these other cross reactive foods may keep gluten antibodies running high even on a strict gluten free diet, or they may react on their own and produce symptoms similar to the gluten free diet.Foods believed to cross react include wheat, barley, rye, corn, soy, milk, eggs, yeast, coffee, sesame and chocolate, and in some cases, oats.Even some non gluten grain substitutes may rarely trigger reactions in a few people, including buckwheat, quinoa and millet.
herika,
Sep 18, 10:21pm
"Some researchers, professionals and patients find there are many serious manifestations of The Gluten Syndrome other than "villi damaged celiac disease" and IgE "wheat allergy".Damage is believed in many cases to focus in other organs or systems beside, meaning not necessarily including, intestinal villi,Therefore villi biopsy may be negative but damage may be to other tissues, organs, nerves, etc".Im finding information like this so valuable and it explains so much to me, I hope it helps others too :)
janny3,
Sep 21, 10:47am
too good to lose BUMP just for you Adrienne!
herika,
Sep 22, 3:42am
From Dr Rodney Fords website: Indiscriminate, repeated gluten indiscretions may eventually cause serious physical and neurological damage/psychiatric symptoms and study indicates higher mortality rates. "Indiscriminate cheating patterns" on the gluten free diet, i.e., consistant occasional consumption of gluten on an otherwise gluten free diet, (pizza, birthday cake, croutons), may immediately or eventually trigger stronger physical or neurological/depression/psychi- atricreactions than were experienced before the patient began the gluten free diet. Some researchers and professionals believe the brain and nervous system are particularly susceptible to gluten damage and that nerves may be silenced by this damage.
gaspodetwd,
Sep 22, 4:31am
i am hoping to go to the gluten free expo and go to the seminars without the kids. I really want to know whether miss 2 will get to teh stage of having to carry an epi pen - and if oterh things will act as a trigger - as it did in my MIL before she died.
herika,
Sep 22, 6:45pm
I hope you manage to get to those seminars and find out what you need to know, hopefully they will have more up-to-date information for you. My daughter has to carry medication on her at all times.The longer Ive stayed off gluten etc the better I have become so lets hope your daughter has the same improvement :)
toot2toot,
Sep 22, 8:51pm
great thread guys! my dps children are coming down for school holidays and they are on a gf diet thank you for all the information
herika,
Sep 23, 7:18am
You're welcome, glad to help bumping for anyone else who may be interested :)
danielvds,
Sep 23, 10:14am
Have any of the food intolerant posters looked into the foods that they 'are' eating causing all these intolerances.Just because your body is not reacting to them doesn't mean that they not causing the problems.
gaspodetwd,
Oct 2, 3:43am
I've just been reading that. Miss 2 is ill again. We have been through a good month - now I can't find what I have given her. the only culprit I can think of is Cinderella raisins - which she got a box of when we were out. Are they oiled!
herika,
Oct 3, 12:14am
Hopefully the info in this thread will help more people get to the bottom of their health problems :)
herika,
Oct 5, 8:10pm
Im sorry I cant help you with that question Does the packet have a free phone number you could ring!Some dried fruit is dusted with flour which can contain gluten.Isnt it so annoying just when you have it all sorted this happens.I hope you find out what it was that upset your daughter :)
herika,
Oct 8, 2:12am
keeping up there
herika,
Oct 9, 6:17am
Bumping in the hope that gaspodetwd's question may be answered :)
gaspodetwd,
Oct 9, 6:20pm
Culprit! Watermelon. We gave her it again - only 1 slice - but both her and my Dh were ill. It looks nasty whenit comes out the other end - and my Dh says it gives the same reaction as gluten for him. It is miss 2's birthday tomorrow. Fingers crossed all food is okay and doesn't make her ill. I am making the cake - a classic sponge with fresh cream and strawberries. She can have limited dairy - and last time I made it she LOVED it.
red45,
Oct 9, 11:33pm
I've just got my food intolerance test results back, I had the ALCAT test.What an eye opener.Reason I had it done was a combination of body inflammation, auto immune probs, thyroid etc.
The foods I've regularly been eating are on my reactive list as are olives and almonds.Been using olive oil and chomping away at almonds.
Currently re looking at what I can eat etc (no.milk, wheat, egg yolk, teas tomato, lamb, sugars,lettuce, potato)thank goodness for coconut oil and cocoa :)Im reluctant to switch to soy products as Im in two minds as to how beneficial they are
red45,
Oct 9, 11:34pm
Also on my food intolerance reactive food is watermelon, strawberries and apricots. what is in these foods that causes inflammation!
gaspodetwd,
Oct 10, 2:14am
watermelon is nasty. Strawberries seem fine. Apricots and peaches and nectarines - ditto. It doesn't make a lot of sense.
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