Gluten Intolerant - but not Coeliac x2

I thought this was for recipies Why do you need to separate one lot of gluten free people from another! We are all in the same boat, gluten free. We all feel better gluten free. And Herika how do you know you do not have coeliac! From what I understand the blood testing is not 100% accurate. Please don't have an us and them when we should be working together on recipes! If you want to discuss the ins and outs of other components of gf, which does not include recipes, why not go in the general section! Sorry, but I hardly ever find any recipes on the gf threads anymore.

hi cathy dont be sorry, you are entitled to your opinion.Unfortunately not all gluten intolerant people are the same.Some can have cows milk others cant, some can tolerate gums some cant and the list goes on. The reason I started this thread was so it could be a helpful one for people who are gluten intolerant and not Coeliacs as the needs can be quite different, as said above there are lots of foods Coeliacs can have that non Coeliacs cant. A personintolerant/sensitive to gluten has a different reaction to what aCoeliac does and its good for non Coeliacs to be able to share their experiences. :)

I thought this was for recipies Why do you need to separate one lot of gluten free people from another! We are all in the same boat, gluten free. We all feel better gluten free. And Herika how do you know you do not have coeliac! From what I understand the blood testing is not 100% accurate. Please don't have an us and them when we should be working together on recipes! If you want to discuss the ins and outs of other components of gf, which does not include recipes, why not go in the general section! Sorry, but I hardly ever find any recipes on the gf threads anymore.

herika - what a load of rubbish! Gluten intolerant people are gluten intolerant - end of! I would suggest that coeliacs are far more intolerant to gluten than non tolerant gluten free people as it actually does damage to their intestines. You are far too extreme in your views. In my opinion you need expert help instead of condemning everything we eat. Do you ever stop to think that you may be doing more harm than good with your posts on here in view of the fact that mnay newly diagnosed gluten intolerant people are already confused about what they can or can't eat.You have no medical background, have not been diagnosed ( apart from being seen by a medical herbalist)yet you offer advice on here as being the gospel

If Coeliacs are more intolerant to gluten than non-Coeliacs why is it they say Coeliacs can handle low gluten foods!Most of the non-Coeliac people I know cannot handle even small amounts of gluten and even contamination is a problem.

I know its difficult to understand and it took me years to come to grips with it. I was under doctors for years (see my post 32)who couldnt work out what was wrong and in the end came up with IBS. If it hadnt been for the Medical Herbalist I dont know what I would have done. She at least put me on the right track so I could do something about it. (I dont give out all my personal info on here). Perhaps if Coeliacs referred to themselves as having Gluten Entropy and NCGI referred to themselves as having a gluten sensitivity it might help with the confusion! One of the main problems for NCGI people is recipes, such as are in Coeliac Society ones, as they can contain ingredients NCGI people cant have.Anyway, Im hoping to help NCGI with this thread but if any Coeliacs get some help from it then thats great too :)

why should I call myself something different when the word coeliac has been around for centuries. If I did call myself something different, I would get blank looks!Who would then have the coeliac name. The guy who named coeliac disease was ahead of his time, as it wasn't until the late forties that they actually knew what caused coeliac. I give up Herika, you can keep your threads.

herika - what a load of rubbish! Gluten intolerant people are gluten intolerant - end of! I would suggest that coeliacs are far more intolerant to gluten than non tolerant gluten free people as it actually does damage to their intestines. You are far too extreme in your views. In my opinion you need expert help instead of condemning everything we eat. Do you ever stop to think that you may be doing more harm than good with your posts on here in view of the fact that mnay newly diagnosed gluten intolerant people are already confused about what they can or can't eat.You have no medical background, have not been diagnosed ( apart from being seen by a medical herbalist)yet you offer advice on here as being the gospel

herika - so you have irritable bowel syndrome I suggest you get a second opinion from a specialist. You still continue to "generalise" because of your condition. You place all non gluten people in your boat when in fact many people have varying degrees of intolerance (excluding coeliacs). You may in fact be doing more damage to your health (despite feeling better at the moment)following a diet such as yours. You need close monitoring by a specialist and further explorative procedures.

melford how can I have IBS when my system is working normally, which it has been for a number of years now. Irritable bowel is when a person is troubled by diarrhoea at one time then constipated another and this continues.I have food intolerances/sensitivities and that is my problem, but as long as I dont eat why upsets me, Im fine.I do not generalise, I accept everyone is different - see my post 36.I disagree with you - I think Coeliacs have varying degrees of problems with gluten too (as I have read in peoples posts).I am very healthy, all my blood tests and examinations are not only good but very good, they cant find anything wrong with me (except I do have a problem with high blood pressure). Perhaps you need to do some reading up on the differences between Coeliac Disease and gluten sensitivity :)

herika - I read your previous post that the Dr diagnosed you as having irritablebowel syndrome so are you saying you disagree and you have put yourself on a gluten free diet! I have never ever heard of anybody that has to be as extreme almost to the point of being paranoid about eating any minutest amount of gluten as you do. Anyway, that is your choice and if you are better now then good for you and I'll leave it at that.

The following is taken from www.ntolerance.co.nz/ The concept of adverse reactions to gluten (WITHOUT COELIACDISEASE) has been controversial over the last decade. This has changed.It concerns: The concept of gluten sensitivity has previously met with stubborn resistance from majority of medical practitioners.
Paediatricians and General Practitioners now endorse gluten sensitivity on their new website Dr Rodney Ford states that the gluten-sensitivity (or gluten syndrome) diagnosis has now reached official status.For over a decade he has been researching and promoting the concept of gluten sensitivity.Up until now, this idea has been met with stubborn resistance from majority of medical practitioners. But the tide has turned.Overwhelming clinical evidence of gluten sensitivity has led to the adoption of the “gluten-sensitive diagnosis” by the Department of Paediatrics, Christchurch Hospital.

other sites (NZ ones) that say Coeliacs is different to gluten sensitivity:www.glutenfreekiwi.com/gluten-intolerance.html
So What Is Gluten Intolerance!
Well it is a type of food allergy, to gluten, a small particle found in wheat, what causes a number of allergies and symptoms, there are different degrees of gluten intolerance. GLUTEN INTOLERANCE DIFFERS TO COELIAC DISEASE. Some of the sideeffects of eating gluten are far from plesant.

www.glutensensitive.com/ and www.coliac.com/ which is about Dr Rodney Fords book: Are You Gluten Sensitive! and there are lots more :)

why should I call myself something different when the word coeliac has been around for centuries. If I did call myself something different, I would get blank looks!Who would then have the coeliac name. The guy who named coeliac disease was ahead of his time, as it wasn't until the late forties that they actually knew what caused coeliac. I give up Herika, you can keep your threads.

herika - I read your previous post that the Dr diagnosed you as having irritablebowel syndrome so are you saying you disagree and you have put yourself on a gluten free diet! I have never ever heard of anybody that has to be as extreme almost to the point of being paranoid about eating any minutest amount of gluten as you do. Anyway, that is your choice and if you are better now then good for you and I'll leave it at that.

Dr Ford says that this change of stance will come as a great relief to the many gluten-sensitive sufferers, who previously had been given no support for taking the gluten-free option.He says that a lot more research is needed to better understand how gluten is affecting so many people.His research has found that about one in ten people have this sort of adverse reaction to gluten. He is currently conducting a series of double blind challenges to better document the extent of gluten sensitivity children. Hopefully this thread will inform and help all NCGI people :)

I copied this info about allergies off a website: Type 1 food allergies result in high levels of IgE antibodies in the blood so they are easily diagnosed by tests. Many doctors consider IgE mediated allergies to be the only real allergies, yet most food allergies are not Ige mediated. Only 3- 5 % of children and 1-2 % of adults are estimated to be affected by Type l food allergies.Type ll: Though not considered a true allergy by more conservative doctors, a Type ll reaction still results in high levels of antibodies, usually IgA, IgG and IgM, as well as the typical inflammatory reactions.
Type lll: Delayed reactions often go unrecognized because the symptoms are not usually obvious, and may occur days after the food is eaten. Also, since they do not involve IgE antibodies, delayed allergy reactions to not show up on standard skin tests or some blood tests. Instead, they manifest as clusters of physical, behavioral and learning symptoms that affect several body systems at once. Type lll allergies are for this reason often called 'hidden' allergies.

. A person with Type lll food allergies can suffer from recurring breathlessness, mucousy throat, sporadic hyperactivity and emotional swings, chronic stuffy nose, and flu-like symptoms. For another person, symptoms can include headaches, itchy eyes, stomach pains, depression, fatigue, sleep problems, and swollen lymph nodes.
These delayed reaction patterns of food allergy are difficult to diagnose. Yet health practitioners believe that they account for most food allergies, especially in children. In my opinion, any undefined pattern of illness that involves different symptoms and different body symptoms should be taken as a likely sign of food allergy until proven otherwise. I found that article very interesting and learnt some new things, hope it helps others :)

I copied this info about allergies off a website: Type 1 food allergies result in high levels of IgE antibodies in the blood so they are easily diagnosed by tests. Many doctors consider IgE mediated allergies to be the only real allergies, yet most food allergies are not Ige mediated. Only 3- 5 % of children and 1-2 % of adults are estimated to be affected by Type l food allergies.Type ll: Though not considered a true allergy by more conservative doctors, a Type ll reaction still results in high levels of antibodies, usually IgA, IgG and IgM, as well as the typical inflammatory reactions.
Type lll: Delayed reactions often go unrecognized because the symptoms are not usually obvious, and may occur days after the food is eaten. Also, since they do not involve IgE antibodies, delayed allergy reactions to not show up on standard skin tests or some blood tests. Instead, they manifest as clusters of physical, behavioral and learning symptoms that affect several body systems at once. Type lll allergies are for this reason often called 'hidden' allergies.

The article in my last 2 posts finishes off: Given the prevalence of type lll food allergies, other testing methods are called for. The most common non-standard test is the Rotation Diet. Common allergenic foods and suspected food allergens are eliminated from the diet for 4-7 days, then reintroduced. When the body is given a chance to clear of food allergens, symptoms will usually subside or disappear. By reintroducing the food again, you cause symptoms to reappear, allowing you to identify just what foods affect you. :)

Its great now that gluten sensitivity has been given official status.For all those people who are sensitive and non-Coeliac andcant have gluten, cows milk, vege gums, additives and preservatives, and various other foods such as peanuts, soy, tomatoes, rice, corn etc etc it means we will be taken seriously.Hopefully this thread will help get the message out there! :)

I find herika great! I have done a lot of reading research on lots of aspects of diet - as a Mum. I am not a Doctor or a specilalist but I do know what makes the individuals in my family ill or behave strangely! I have been shocked by some advice that hospital dieticians gave me as they didn't seem to understand whatbeing gluten free really entailed - when there are oterh foods to be avoided as well.

I also find that 2 in my family have very similar foods problems as herika. So I come here for great reading - not recipes.

thank you for the lovely comments gaspodetwd Im glad this thread helps.Some people just dont have the time to do the research, it can take hours and hours, so when I have the time I post what I find in the hope that it will help others. :)

Gluten Intolerant - but not Coeliac x2

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