Gluten Intolerant - but not Coeliac x2

If you have gone onto the gluten free diet but are still having problems you may need to look at the possibility you are gluten sensitive. Some researchers believe gluten most often damages other tissues, organs, nerves or even nerves in the gut, beside the villi, meaning NOT NECESSARILY including the villi. In these cases villi biopsy is negative.
These researchers believe the mere presence of gluten related antibodies indicate the immune system has reacted to gluten and the gluten free diet is recommended.They also say cellular mimicry between the gluten related antibodies and many innocent body tissues is often the mechanism of damage.(This means the body tissues "look like" gluten enough to attract and bind with the gluten related antibodies which in turns attracts killer cells to that tissue and instigates autoimmune damage.
Published research indicates that gluten may at times break down into a number of "pieces" or glutenins for which there are no tests at this time.For this reason, it is suspected that some patients may react to gluten in ways that cannot be confirmed by current inadequate antibody panels.
Many patients choose to listen to their own bodies' message and are thankful the body was able to tell them something is not right.
I have such a dramatically bad reaction I know when Ive eating something I shouldnt have and I put it on my "no go" list.
Fortunately only a few natural foods have gluten in them so there are lots of foods that can be eaten, which often means a much healthier diet :)

you can buy pills now that do something so you can eat gluten, its not soemthing you would use all the time, but good for speical occasions when you want to be able to eat gluten, oh and yes they do work! if your keen i will find them and post the name of them

Herika, I couldn't get the health pathways link to open. Do you have a better one or what can I do to navigate to that site please?

Wow - we foudn what was my my Dh ill - Bath foam with wheat in it! Apparently it is quite common to be ill from bath products - who knew!!!???

Oh my goodness!
Isnt it amazing where gluten can turn up!Dont forget about the gum on envelopes - I got caught with that one.
Its great you figured out where the gluten was, one more item to put on the "no go" list.
Thanks for posting that information here, its good to know these things :)

If you have gone onto the gluten free diet but are still having problems you may need to look at the possibility you are gluten sensitive. Some researchers believe gluten most often damages other tissues, organs, nerves or even nerves in the gut, beside the villi, meaning NOT NECESSARILY including the villi. In these cases villi biopsy is negative.
These researchers believe the mere presence of gluten related antibodies indicate the immune system has reacted to gluten and the gluten free diet is recommended.They also say cellular mimicry between the gluten related antibodies and many innocent body tissues is often the mechanism of damage.(This means the body tissues "look like" gluten enough to attract and bind with the gluten related antibodies which in turns attracts killer cells to that tissue and instigates autoimmune damage.
Published research indicates that gluten may at times break down into a number of "pieces" or glutenins for which there are no tests at this time.For this reason, it is suspected that some patients may react to gluten in ways that cannot be confirmed by current inadequate antibody panels.
Many patients choose to listen to their own bodies' message and are thankful the body was able to tell them something is not right.
I have such a dramatically bad reaction I know when Ive eating something I shouldnt have and I put it on my "no go" list.
Fortunately only a few natural foods have gluten in them so there are lots of foods that can be eaten, which often means a much healthier diet :)

Herika, I couldn't get the health pathways link to open. Do you have a better one or what can I do to navigate to that site please!

Wow - we foudn what was my my Dh ill - Bath foam with wheat in it! Apparently it is quite common to be ill from bath products - who knew!!

Ive been reading about allergies and came across an article from the http://allergy.healthcentresonline.com/ site that had interesting info on allergic and pseudo-allergic reactons caused by penicillins, cocoa and peppermint additives.
It says that the histamine release caused by the cocoa and peppermint depended on non-immunological mechanisms, i.e. pseudo-allergic reactions.

It also talks about allergic reactions to chocolate and cocoa and a person may be reacting to the chocolate or cocoa but the may also have a reaction to the additives in the chocolate.
Also cocoa powder may contain starch and that could cause a reaction.
Hope this info may be of help :)

Seeing as though it has got a bit heated in the other GF thread - this had better come back. My chicken stock is cooling and I thought I would check out any good ideas from this thread. And for us - we are very similar to Herika - and it isn't just GF.

Yes, there are lots of people who not only have gluten intolerance but have other food intolerances as well. I do hope you get some helpful ideas from here.
Ive been having foods made with pea/chickpea/besan flour lately and find I have to be careful how much I eat at any one sitting.If I have too much it is too fiberous for me and my sysem plays up (even tho its GF).When I get some time Im going to experiment using half pea flour and half rice flour and see how that goes.

Hi, I checked out that story. Its great to read a success story such as this, and hopefully it will help others who are similar. (Note: Some people will still not be able to have foods such as oats).
I think extreme diets of any kind are not good.Since Ive been eating gluten free Im the healthiest Ive ever been, I rarely go to the doc with any complaint.I try to eat as much fresh, raw seasonal foods as I can as well as meat, fish, eggs, rice etc making my diet a balanced one too.
I add lots of herbs and spices to meals and have a good variety of foods.Before eating a GF diet I ate anything I wanted without thinking of the consequences, so finding out I was gluten intolerant has helped me have a much healthier eating regime.It took a lot of research but was well worth it.
Thanks for that link, all the best to you :)

Starting this thread up again. Are you gluten intolerant, sensitiveor allergic, but not actually a Coeliac. Can you not tolerate gluten or other things - such as vege gums,cows milk, corn, tomatoes, high fibre foods, soy or anything else. Vegetable gums (which I react really badly to) are in so many pre packaged foods that have Gluten Free on the packet and it means I cant have them. Who else is in the same boat! Im casein intolerant and find Im okay with Nanny Lane Goat milk but not cows milk. I have to be very careful not to eat even the smallest amount of gluten or else Im in trouble. Hopefully this will be a support thread for sharing our thoughts, feelings and any help we think could be of use to others similar to ourselves. :)

I think it would be great to share our stories and experiences and what we can and can't eat.For instance some people can't have rice - I dont know what I'd do if I couldn't have rice! Hopefully this thread will be informative and helpful for anyone NZ wide :)

A bit of info: to test for gluten sensitivity, also referred to as intolerance, the tests needed are the IgG-gliadin and the IgA-gliadin ones. MedLab South in Christchurch does these tests, if anyone knows of anywhere else where these are done, please let us know. You must specify you want this test esp. if the CD ones come back negative. Out of 500 people tested the figures say that only 50 have Coeliac Disease. :)

Great this is up again. My two are GF not coeliac and cannot have any gluten - or tomatoes, capsicums, potatoes, avocadoes, eggplants, soybean oil, oranges or grapefruit. Some nuts are questionable. And as long as they follow the rulesthey are both very healthy!

I think it would be great to share our stories and experiences and what we can and can't eat.For instance some people can't have rice - I dont know what I'd do if I couldn't have rice! Hopefully this thread will be informative and helpful for anyone NZ wide :)

Thats it! Find out what you cant eat and dont eat it.Thats what I do and I dont have any problems - unless of course a manufacturer changes or adds an ingredient I cant have to a product that didnt have it before!Thats part of the reason why I eat very little pre prepared or packaged foods and make most of our meals etc from scratch, which has a bonus - its usually way healthier!I use the freezer a lot, esp for my GF bread. :)

I seem to tolerate the acid free tomatoes ok like you the gums and additives affect me too.I also have to be careful how much corn, shellfish, and greens I eat. For a while I couldnt have honey but seem okay with it now. I actually see it as a good thing I cant have much with additives etc in because they are such bad things anyway :)

How do you know you are not. Coeliac! From my understanding, the only way to confirm/ deny Coeliac is by biopsy!

my husband has the biopsy and though the bloods came back postive, the biopsy was negative. However it was someone new doing it - and they only took one sample. he has NO desire to have another! My two year old had blood work that came back negative - but any of the above foods make her really ill. And she is fantastic as long as she is on the correct diet. the paed suggested we get her retested when she is 5. Oh - adn that she continues on her 'right' foods.

hi bj nichols I have spoken to Coeliacs who say they often dont have any symptoms so I wonder how they manage to know what to eat and what not to eat.If I eat anything with gluten in it I get the most awful diarrhoea you could imagine and it takes around 3 days for my system to properly heal.So I definately know if Ive eaten anything that upsets me - and it happens very quickly once Ive eaten the offending food, sometimes in 10 - 20 minutes. So there is no way I could eat even the tiniest bit of gluten and not know about it! But I see this as a good thing, because I know for sure when something has gluten in it, then I stay away from that particular food :)

The official explaination: Allergies, intolerances, and coeliac disease are all different. Allergies affect 7% of children and 2% of adults, and usually involve one or more of: milk, eggs, wheat, soybeans, nuts, and peanuts (legumes). Allergy reactions include asthma, arthritis, runny nose, itching, and rashes.
Most children outgrow allergies within a few years, and a number of adults report that allergies can disappear if they stay away from the offending foods for a year or more. Allergies are potentially fatal if they trigger an anaphylactic reaction. Allergy reactions are caused by the immune system. [Allergies involve IgE antibodies, which are different from the antibodies involved in CD].

. Intolerances are unlike allergies in that they have nothing to do with the antibodies our immune systems produce. A food intolerance is a non-immune reaction to food or food additives. Gluten intolerance causes difficulty digesting gluten and exhibits mild symptoms ranging from runny noses and wheezing to digestive upsets such as abdominal pain, bloating, and diarrhea.
CD, also known as gluten enteropathy, is neither an allergy nor an intolerance. Gluten enteropathy causes damage to the lining in the small intestine, which interferes with the absorption of nutrients. Neither allergies nor intolerances lead to this sort of intestinal damage. :)

Gluten Intolerant - but not Coeliac x2

Related Topics